1/🧵Long COVID Brain Problems are a global disaster
📌Hiding in plain sight
📌Too often ignored by doctors
📌Read our new Lancet-RM article
📌On the intersection of #LongCOVID & #PICS
📌I’ll unpack below
Link gives 6 weeks of open access:
authors.elsevier.com
📌Hiding in plain sight
📌Too often ignored by doctors
📌Read our new Lancet-RM article
📌On the intersection of #LongCOVID & #PICS
📌I’ll unpack below
Link gives 6 weeks of open access:
authors.elsevier.com
2/ This figure we created presents scientific mechanisms of “Neuro” #LongCOVID
We show hypothesized points for interventions that we & others around the 🌍 are testing via robustly designed randomized controlled trials to get answers for those suffering this very real disease.
We show hypothesized points for interventions that we & others around the 🌍 are testing via robustly designed randomized controlled trials to get answers for those suffering this very real disease.
3/ People w Long Covid are losing their ability to hear, think, and communicate.
🔹Please validate them as experts of their own illness.
🔹Read about this man’s 👇struggles & see an example of our @CIBScenter & others’ virtual support groups
🔹We can create healing communities
🔹Please validate them as experts of their own illness.
🔹Read about this man’s 👇struggles & see an example of our @CIBScenter & others’ virtual support groups
🔹We can create healing communities
4/ Here are 3 active definitions of #LongCOVID with comments about plans to review & revise at @CDCgov, @WHO , @NICEComms & @NASEM_Health
What are your top recommendations as groups pour over literature & attempt to shape definitions to help both research and clinical practice?
What are your top recommendations as groups pour over literature & attempt to shape definitions to help both research and clinical practice?
5/ Table of Disabling Symptoms 🧠
📍Study this table to learn how suffering experienced by people w profound brain effects in #LongCOVID is vast & scary
📍Neurological, Cognitive Psychiatric/Mental Health capacities are compromised
📍Let’s listen to them, understand & empathize
📍Study this table to learn how suffering experienced by people w profound brain effects in #LongCOVID is vast & scary
📍Neurological, Cognitive Psychiatric/Mental Health capacities are compromised
📍Let’s listen to them, understand & empathize
6/👇 This @LancetRespirMed article reviews current knowledge of epidemiology & pathophysiology of ongoing neuropsychological impairments in #longCovid
It Includes evidence-based approaches to management & priorities for a current & future research…
bit.ly
It Includes evidence-based approaches to management & priorities for a current & future research…
bit.ly
7/ MECFS & #LongCOVID
✔️Many patients w neuro LC meet diagnostic criteria for #MECFS
✔️Discerning these symptoms in neuro-LC is imperative
✔️Those w ME/CFS usually need to apply rigorous pacing techniques to avoid cognitive & physical PEM exacerbated by therapy.
✔️Many patients w neuro LC meet diagnostic criteria for #MECFS
✔️Discerning these symptoms in neuro-LC is imperative
✔️Those w ME/CFS usually need to apply rigorous pacing techniques to avoid cognitive & physical PEM exacerbated by therapy.
8/fin
✏️ Hope of a better future for LC pts comes from science & humanism
✏️ Many neurological diseases aren’t recoverable
✏️ We do not know this about long Covid
✏️ Never give up hope
Let’s insist on the best science to design the best studies to find the best answers…for YOU
✏️ Hope of a better future for LC pts comes from science & humanism
✏️ Many neurological diseases aren’t recoverable
✏️ We do not know this about long Covid
✏️ Never give up hope
Let’s insist on the best science to design the best studies to find the best answers…for YOU
Loading suggestions...